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GameChanger Rare Disease Day 2022

February 1 @ 12:00 am - February 28 @ 11:30 pm PST

Graphic with stylized photo for Vasco, 6 year old from Peru who has a rare disease

6-year-old Vasco from Peru loves to play, paint, dance and read. But most of all, he loves spending time with his family.

It took three years for Vasco to obtain a diagnosis for his rare condition. After being misdiagnosed and attending many different hospitals and health clinics in Peru without any doctor being able to determine what his illness was, the doctors finally referred him to a hospital in Lima, Peru’s capital. It was there that he was diagnosed with Gaucher’s disease, a disease that is frequently confused with other illnesses.

Help Kids like Vasco this Month

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

  • 300 million people living with a rare diseases worldwide
  • Over 6000 different rare diseases
  • 72% of rare diseases are genetic
  • 70% of those genetic rare diseases start in childhood.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.

Support GameChanger on #RareDiseaseDay to help hospitals and caregivers create and provide more education, treatment and awareness surrounding Rare Diseases.

All donations made this month are dedicated to Rare Disease Day, directed towards CHOC, Primary Children’s and The Children’s Inn. Each donor will receive a receipt for tax purposes.

Donate and be a GameChanger by visiting this link.

Join our Fundraiser on Tiltify

Can you help us get to our goal of $5,000 this month for Rare Disease Day?

Join our Tiltify campaign and stream for us this month for Rare Disease day!

Click here to get started.

Visit https://www.rarediseaseday.org/ to learn more about the global movement.

Details

Start:
February 1 @ 12:00 am PST
End:
February 28 @ 11:30 pm PST
Event Category:
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